Tuesday, May 17, 2011

It's official--Apraxia journey continued

I've cried more tears in the past 2 days than I remember crying in a long time. Aaron has officially been diagnosed with Apraxia.

I found his original assessments from March 23, 2010--16 months. Expressively he was at a 6 month level--a 62% delay and comprehension he was at a 9 month level--a 44% delay. As of the beginning of may, almost 30 months old, his expressive is at a 18 month level--40% and comprehension is at 33 months--0% delay.

The meeting with the therapists and intake officer went okay. The therapists said how much they enjoy coming to our house, how great of parents we are, and how bright of a boy Aaron is. They worked to make our schedule as easy as possible--2 days, 3 different sessions and done with both sessions by 1 pm, which really frees up the day, makes getting grace home from school easier and the best part is that we only have to be here on hour a week, meaning Jon's work schedule won't be messed with much.

The frustrating part is that once he turns 3, he is done with EI. We start over with new therapists, new schedule and the chances of them working with a child who has Aaron's specific disorder is very thin.

I'm frustrated---I don't know if I'm ready for the start of this new journey, but God hasn't given me a choice. He has great plans for this journey and great plans for Aaron and I know as he adds new words (7 since Wednesday) this journey will get easier.

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